Life Takes a Crazy Turn

My dad was diagnosed with cancer while I was out in Vegas– this time it’s a lot more serious.  He battled cancer a few years back and knocked it out.  This time it’s back, in the esophagus.  We were sitting around on Memorial Day weekend and he mentioned that he couldn’t swallow too well and didn’t have much of an appetite.  My first thought of course, was cancer and I told him so– I wanted to make sure that he went to the doctor and got it checked out.

Dad starts radiation on Monday to shrink the son-of-a-%$#*.

Send some shrinking prayers our way.

Z You at the Deaf Seniors of America Conference

I’m here in Las Vegas hanging with 1,800 Deaf senior citizens.  And what a cool group they are to hang out with!  I can’t help myself– I find that I get into conversations with them and want to hear their stories of growing up and where they worked at.  One guy worked at Coke for 38 years…another is a tax attorney… a couple of them worked their way up at the post office to management level and all sorts of other jobs.  At the Z booth, while they try out the Z-340 videophone, some of them have been sharing stories of how they had no phones and had to send letters to their friends to arrange a visit.

Today, we revealed our very own “Dr. Z,” the infamous Phil Bravin who is the original Deaf tech geek.  He can remember playing around with code many years back and he recently put together a neat website for everything Z:

Doctor Z’s website

Dr. Z

Dr. Z

Marlee Matlin arrived at noon to sign her books for over two hours.  She took a moment to pose with Laurel and Hardy (yes, they work for the Z team too!):
Marlee Matlin with Laurel and Hardy

Marlee Matlin with Laurel and Hardy

U. S. Chung, the Z Project Manager drew a crowd of his own this afternoon:
USC shows the Z-340 to Seniors

USC shows the Z-340 to Seniors

We’ll be at the Z booth on Thursday from 8 a.m. to noon.  If you’re at the DSA conference, stop by and say hi!

Greetings from Vegas

Where in the world is Karen?  In Vegas.  Not exactly my favorite place in the U.S. but I’m learning to like it this week because I’m with a great bunch of people from the Z team and the Deaf Seniors of America.  I’m working the Z booth all week at the conference, so if you’re in Vegas, stop by Paris and say hi.

On Sunday, we had a free day to explore the strip so a few of us went to the roller coaster at New York.  Later that night we went to the Stratosphere and tried the rides on the top.  I discovered that I have a new fear of heights.  There was one ride that throws you over the edge– ack!  Poor Manny Johnson, I ended up squeezing the heck out of his hand when we went over the edge.  Later that night, I woke up in the middle of a nightmare– the brakes on the ride failed and down we went. 

Thank goodness it was only a dream.

Let's go on the roller coaster!

Let's go on the roller coaster!

Karen Putz Named To National VCO Position

Karen Putz Named To National VCO Position

CLEARWATER, Fla. [June 1, 2009] — ZVRS has named Karen Putz as its Z Video Solutions manager responsible for national voice carry-over (VCO) services. She also serves as sales manager for Illinois.

“We are delighted to have Karen take on a leadership role for our national VCO services,” said Tim Rarus, ZVRS vice president of sales. “As a VCO user herself, Karen understands the unique needs and challenges of these customers. Her dedication to customer service will greatly benefit The Z™ VCO users.”

Putz joined the company in October 2008 as a VCO outreach specialist, becoming sales manager in January 2009. The position involves working with deaf and hard of hearing customers to meet their videophone needs and managing a team of Z Specialists, who are responsible for installing Z products for customers.

In her new role, Putz provides nationwide outreach, focusing on customers who use VCO services. ZVRS specializes in one-line VCO, enabling customers to use their voice with Z products without the need for a second phone or additional phone line, a requirement when using many other VCO products.

“I love my work at ZVRS. There’s nothing more thrilling than seeing a customer connect with others via our Z products and services,” said Putz. “I work with a great team, and I enjoy having many different opportunities to work with deaf and hard of hearing individuals from all over the U.S.”

About The Z™

ZVRS (The Z™) is a product of CSDVRS, the first video relay services (VRS) provider to offer 24/7 availability, Spanish VRS, video mail and personal 800 numbers. Launched nationally in 2000, CSDVRS was developed by and for deaf and hard of hearing individuals based on feedback from the nation’s deaf and hard of hearing community. Today, the company remains the dedicated to that same spirit of innovation and commitment to excellence, continuing to set the industry standard as the nation’s premier VRS provider. For more information about ZVRS and The Z™ family of products, please visit zvrs.com. 

SB 68 Hearing Aid Bill on ABC News

Jim and Julie Chavez and Dana Craig are featured in the news segment on ABC News covering SB 68 which would provide insurance coverage for hearing aids for Illinois residents.  A big thank you goes to Senator Ira Silverstein who has worked hard from the beginning to push this bill through.

ABC News on SB 68 Hearing Aid Insurance Coverage  (captioned)

The most surprising stance of all is the one taken by the Illinois Academy of Audiology opposing the bill for all ages and instead supporting it only for children. 

I’d like to see Illinois become the second state (Arkansas is the first) to pass a bill providing insurance coverage for hearing aids for residents of all ages.  It’s the right thing to do, as Senator Ira Silverstein stated in a recent meeting with the proponents and opponents.

May 31st is the deadline to get this bill moved to the floor or extended into the fall session. The time is now–call the Senators in Illinois and tell them to support this bill.

For more information and a list to call:

Hearing Aid Action

Deaf Nation and SOBCon’09

Last week, I was scheduled to speak at SOBCon’09 with Glenda Watson Hyatt but I ended up working at Deaf Nation in Ponoma, California.  I drove down to Chicago on Thursday to meet with some customers and then headed over to Hotel 71 to find Glenda.  Glenda and I have been online buddies for about two years, but this was the first time we met in person.  As soon as I walked in the hotel and spotted her smiling face, I ran over for a hug.   Sitting right next to her was Amy Derby, another fellow blogger who happens to be hard of hearing.  Amy and I met last year for lunch at Chili’s.  We mistakenly walked into a Baker’s Square and have been craving pie ever since.

The three of us chatted with Lorelle VanFossen, Liz Strauss (who looked quite hot with her new haircut!) and Chris Brogan (who looked great, minus hair!), then paused for a picture with others from SOBCon:

Glenda and I managed to communicate in a variety of ways.  I used my super lipreading powers, she pulled out her fingerspelling skills and we connected.  Occasionally we had a third person, an interpreter or her trusty alphabet sheet to rely on.

I flew to Pomona, California the next day and Glenda went on to rock the audience at SOBCon’09.  Take a look at some of the blog reactions:

Is Your Blog Disabled?

Twitter Reactions

You Can Be on Oprah and Larry King

Making Me Cry

While I was sad to miss this year’s SOBCon, I was thrilled to join the Z Team at Deaf Nation in Pomona, California.  My team mate, Jack Busenbark, cracked me up as he brought some super-sized bottles of Hand Sanitizer and insisted that we all practice “safe sales” in light of the Swine Flu:

The next day, the news reported a shortage of Hand Sanitizer.  Jack’s fault.  But hey, the Z Team all went home healthy.

Rally for SB 68 Hearing Aid Insurance Bill

Today, I’m heading down to Springfield for a meeting to discuss SB 68 which would provide insurance coverage for hearing aids for Illinois residents of all ages.   A group of us will be meeting with the opponents of the bill to hopefully reach a common ground in pushing a bill through for insurance coverage for hearing aids.  Surprising to me is that the Illinois Academy of Audiology is one of the opponents for this bill.  It is my understanding that they prefer to limit coverage to children only.

I know that there is a lot of fear that insurance premiums would rise outrageously if we were to pass this bill.  I honestly don’t believe that will be the case.  The bill is very reasonable– providing $2,500 coverage per ear, once every five years.

Reasonable.

Many insurance companies are now at the point where they cover bilateral cochlear implants without the long battles of yesteryear.  One of my friends obtained bilateral cochlear implants not too long ago and she shared that the bill came to $225,000.  She loves her implants and is enjoying all the new sounds she’s hearing each day.  I am thrilled for her.  I just want the same coverage for my family.  There are ten of us with hearing aids.  The hubby and I are wearing hearing aids that could use some repair.  He’s got a broken T-switch.  I have a broken battery door.  We both could use new hearing aids but we’ll have to flip a coin to decide who gets one first.  We hold off, because this is the last year our children quality for state aid for their hearing aids.  What if one of them goes out? 

Consider this– if all of us were to get new hearing aids at once, it is a tiny, tiny fraction of the cost of all of us getting bilateral cochlear implants.  Just something to think about when we talk about insurance coverage. 

Tomorrow, there will be a rally down in Springfield, hosted by CCDI and INCIL at noon.  Meet at Adams Street, by the President Abraham Lincoln Hotel & Conference Center, 701 East Adams Street, Springfield, IL.  Tomorrow is the deadline for this bill to be brought to the floor.  What does this mean?  It means that each one of us has to take some time TODAY to call your Senator and tell them you want this bill voted on and passed.

Here is a list of all the Illinois Senators and their contact information:  Illinois Senators

Here’s how to find out who is your Illinois Senator: Find Senators by Address

The deadline is April 30th to get this bill to the floor and voted on. Call, write, email, fax, visit YOUR Senator and the following Senators (thank the co-sponsors!):

Here’s the contact information for the Senators:

Senator Ira Silverstein (Bill sponsor) isilverstein@senatedem.ilga.gov     217-782-5500

Senator Jacqueline Collins (Bill co-sponsor) : senatorcollins@sbcglobal.net 217-782-1607

Senator Dan Cronin (Bill co-sponsor): 630-792-0040

Senator Martin Sandoval (Bill co-sponsor): (708) 656-2002

Senator A. J. Wilhemi (Bill co-sponsor): (217) 782-8800

Senator Don Harmon (Bill co-sponsor): (217) 782-8176

Senator M. Maggie Crotty (Bill co-sponsor): (708) 687-9696

Senator William Haine (heads the subcommittee): whaine@senatedem.ilga.gov    217-782-5247

Senator Duffy: dan@senatorduffy.com  217-782-8010
Senator Forby: gforby@senatedem.ilga.gov     217-782-5509
Senator Hendon: ihammons@senatedem.ilga.gov      217-782-6252
Senator Burzynski: senatorbrad@verizon.net     217-782-1977
Senator Munoz: amunoz@senatedem.ilga.gov      217-782-9415
Senator Syverson: info@senatordavesyverson.com      217-782-5413
Senator Hayes: jhayes@sentedem.ilga.gov   

The time is now to get this bill passed.  Let’s make it happen.

Marlee Matlin Signs Her Book, “I’ll Scream Later”

What a weekend!

We headed out to the Oak Brook Borders on Friday night to meet Marlee Matlin at her book signing.  Marlee crafted her autobiography “I’ll Scream Later” as a tell-all book and judging from the headlines of the articles swimming around, her book has revealed some surprising secrets:

Marlee Matlin Book:  William Hurt Abused Me

Marlee Matlin Reveals Abusive Relationship

Babysitter’s Abuse Lead to a Life of Drugs, Violence

There was quite a crowd of people that night.  Marlee began the evening by reading an excerpt from her book with Jack Jason voicing.  Each of us had received wristbands when we arrived and we went up in groups of 50.  Marlee looked really beautiful and was extremely gracious to everyone.  I was amazed at her stamina, she signed book after book without faltering and considering that this was her fourth book signing in a week, it was amazing to see how she kept it all up until the very last book was signed.

I brought my Z-340 videophone with me and connected with Tim Rarus (Deaf President Now leader/ VP of Sales) and Sean Belanger (CSDVRS CEO) while I was waiting in line and they had a quick opportunity to chat with Marlee as well.  It was so neat to see the technology at work– who could have envisioned this a few years ago? 

(Photo courtesy of Dino Lomanto)

Yes, those are my younger two kids with me–David was too busy chatting with his friends to get in line.  On the way home, I started reading the book and didn’t put it down until one in the morning.  Later, I found out that many of my friends did the same thing after they left the bookstore– one gal stayed up through most of the night until she finished it. 

I tried to figure out what was so compelling about this book, this peek inside of the life of undoubtly the most famous actress who happens to be deaf–what kept me turning page after page of this book?  I came away with a sense of awe, because despite the dark chapters and the very rough parts to read through, Marlee has “chutzpah.” (Translation: bold guts!)  She has that fiesty spirit inside that allows one to accomplish dream after dream.  That’s what made this book and the story of her life stand out.

My favorite line from the book is simply this: 

My life is rich and I am blessed, and I am grateful.   That I am Deaf is just a footnote.  It is a part of who I am, but far from all of who I am.

That Says It All

Hearing Aid Insurance Coverage–Not Just for Children

A small group of dedicated parents and deaf/hard of hearing adults met last year to create a bill that would provide hearing aid coverage to deaf and hard of hearing individuals of all ages.  No other state has successfully passed a bill that would mandate insurance coverage for hearing aids for all ages.  Most of the states with coverage either pass a tax deduction or limit the coverage to children only.

Senate Bill 68 was introduced in the Illinois legislature by Senator Ira Silverstein.  The original bill provided coverage for all ages up to $2,500.  The bill currently has two amendments attached to it that changes the original bill and turns it into a bill providing coverage for children.

See this video that Dennis O’Brien produced that explains more:

I personally do not support the amendments that are attached to this bill.  Here’s why:  I believe that every deaf and hard of hearing individual should have access to hearing aid insurance coverage regardless of age.  The proposed coverage, $2,500 is very reasonable.

One of my friends recently underwent bilateral cochlear implant surgery.  The total bill came to $225,000.  Her insurance company paid every penny of it.  She is happily enjoying the new sounds that she’s learning each day.

My family has ten hearing aids and we have no insurance coverage at all.  Should we choose to pursue cochlear implants, the bill would easily reach over a million dollars.

How many hearing aids would that cover, for the rest of our lives?  The cost does not come anywhere close.

Isn’t it time to provide insurance coverage for hearing aids?

Take just five minutes to call your local Senator and Ira Silverstein ((217) 782-5500) and tell them that you support the original Senate Bill 68 and would like to have it passed without the amendments.

Yes, indeed, the time is NOW to make this happen!

Are You in the Deaf/Hard of Hearing Closet?

For many years, I hid in the deaf/hard of hearing closet. I wasn’t comfortable dealing with the lone hearing aid that was given to me in fourth grade. During the school day, I hid the hearing aid under my thick hair and pulled off some impressive bluffing maneuvers. I would smile and nod along to conversations during lunch time and at recess.  I did so well that the teachers often told my Mom that I was getting along “just fine in the classroom despite my hearing loss.”

When I look back at my early years in elementary education, I know that I had hearing loss long before it was diagnosed. I remember looking around after getting off the monkey bars, only to find all the kids lined up against the wall, ready to go back inside. I was the last kid left on the playground and I learned to calculate the time left at recess so I wouldn’t be the last kid in. I remember the kindergarten teacher coming over to tap me whenever nap time had ended. I quickly learned to watch the kid next to me and when they got up, I got up.

In second grade, the teacher had a reading session and introduced the book, “Curious George.” I couldn’t get the word “curious.”

“Erius George,” I repeated after her.

No, she said. She repeated the word and then went on reading. I stared at the book, seeing the man with the yellow hat and the brown monkey. I had no idea what the book was about or the interactions between the man and the monkey. It wasn’t until I had my first kid and obtained a copy of “Curious George,” that I finally learned what the story was about.

There are a lot of chunks of my life like that.

I’m sure to my teachers, I appeared to be doing pretty good in school. In seventh grade, we had a class where we each took turns reading a paragraph out loud. I would calculate the number of students ahead of me, count the paragraphs in the book and figure out where I needed to start reading. Sometimes I would get lucky and see someone close to me reading with their finger on each word and if I listened, I could follow along with the words. Then when it was my turn, I’d start in on the correct paragraph.

But inside of me, I know my stomach was churning and I was tense in trying to keep up. There were thousands of situations all through the school day, in after-school activities or on the playground where I was hyper-alert in trying to follow it all.

I’m sure today, there are kids still going through this routine– this coping skill that gets them through the day as “normal” as possible.

I can remember the day I came out of the deaf/hard of hearing closet. It was actually in college. I rode the bus with my hair pulled back in a pony tail and my hearing aid perched on my ear.

And I didn’t care.

For the first time in my life, I didn’t care who saw my hearing aid in public.

That was a turning point for me.

Over the years, I’ve met some people walking around with that closet around them.  Any talk about being deaf or hard of hearing is a painful thing. They know that elephant in the room is there and they step aside so they can talk around it.

One only has to type in “deaf mom” on Google and they’ll quickly learn that Karen Putz and DeafMom go hand in hand. There would be no hiding the fact from a potential employer nor would I even try. Lately, I’ve been receiving emails from other bloggers, who share that they’re hard of hearing or deaf, but they don’t want to highlight that in their blogs for various reasons. Some feel that their hearing status has no bearing on their life. Others feel it’s a sign of weakness and they don’t want to share that.

“I don’t hide it in person,” says Holly Kolman. “It’s just that the internet is forever.”

After chatting with Holly, I learned that she had never published anything online about being hard of hearing. She was willing to discuss it for the first time online on this blog.

“Life with a hearing loss means everything is harder,” she explained. “Almost everyone takes it for granted that people can hear…it’s like expecting someone with normal breathing to understand what asthma feels like–it’s impossible. It is very socially isolating. People think that you’re ignoring them when you don’t answer and they take it personally.”

Holly recalled that some of her teachers did not understand what she was going through in the classroom. Over the years, they told her, “You hear what you want to hear.”

I’ve been told that too. 

In sixth grade music class, we had a test where everyone had to listen to a recording on tape and then write down the beat times.  The teacher noticed that I wasn’t writing anything down.  She tried to explain what I needed to do.  Again, I tried to listen along.  Again, there was nothing for me to write down. 

The teacher was upset.  To this day, I still remember her words:  “Karen, you need to turn your hearing aid up and listen!” 

I told my Mom about this incident and she marched to the principal’s office the next day and explained why I couldn’t follow the music.  The principal called in the music teacher and for some reason, he made me issue an apology to her.  I didn’t understand why, but there I was, saying I was sorry.  To substitute for the missed test, I had to write two 500-word essays on the piano and the guitar–over Christmas vacation.  While my friends were enjoying a break, I was writing reports.

I think we’ve come a long way in terms of awareness, but I think we still have a ways to go to break down those closets that are still walking around out there.